Update

Thanks so much for everyone's support and prayers over BJ's health.  Even if we don't have a ton of information more, it has helped immensely with peace for me over what is going on.  Thank you so much for that!!  (Even the sheer numbers of people who read the blog- 110 views is astounding.  Thanks for caring enough to read) I don't have a ton of answers for my update today, just some more info.  Tomorrow we head to the cardiologist for them to check out his heart size.  I'm half expecting the cardiologist to say we don't need to be there, and half expecting another slew of tests to be ordered.  We'll just have to wait and see.  Our insurance company doesn't want to cover the genetic blood test our pulmonologist wants to have done, so we did a sweat test and it came back negative.  Negative, as in, BJ does not have cystic fibrosis, definitively (within whatever false negative rate the test has).  Yay!  But he could still be a carrier and have similar issues to what he is having now, with less negative impact for his future.  Praise God!  Then next week we had to the gastroenterologist to see what they have to say about his poor gut.  He's had a bad week last week discipline-wise, but it may be just all the chaos.  That's really all I have for you right now.  I'll see what time/energy I have to update tomorrow after cardiology.  Thanks again for your support.  It has been amazing.